Resources
On this Resource page, you'll find the Health Interoperability Playbook sections recommended for people in particular roles, lower-level details on particular topics, and links related to the tools, tracks, and Case Studies.
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By Role
The most important Playbook sections recommended for particular experts on a standards-focused project team:
Playbook Content for Particular RolesTechnical Deep Dives
Detailed Playbook tracks for clinical subject matter experts, standards developers, and systems implementers.
Tools
Resources that new specialty standards initiatives can use for more efficient work.
Playbook Checklist of the most important steps across all five Tracks (download)
Community charter template (download)
Role and resource planning spreadsheet (download)
Data Dictionary Template spreadsheet (download)
SVG Tool used for creating interactive diagrams like the mCODE conceptual data model diagram
Links to External Resources
Key References: Five Tracks
Community Building
Use Cases & Planning
Standards Development
Overview and Technical Deep Dive
- CodeX Standards Design Principles
- Video tutorial on the development of mCODE (May Terry, MITRE, Nov 2023, 2 hr 33 min)
- Office of the National Coordinator for Health Information Technology (ONC)
- Health Level Seven (HL7)
- Fast Healthcare Interoperability Resources (FHIR)
- United States Core Data for Interoperability (USCDI)
- USCDI+ - specialty supplements to USCDI
- US Core FHIR Implementation Guide
- Health Information Coding Systems
- Health Information Terminology Standards
- FHIR Shorthand (FSH) - Language for creating FHIR IGs
- minimal Common Oncology Data Elements (mCODE) FHIR Implementation Guide
Implementation & Testing
- CodeX Trial Matching Use Case Phase 1 pilot report
- More links coming soon
Adoption & Value
- Stakeholder-Specific Value Propositions
- White House Cancer Moonshot leveraging mCODE
- OSTP and ARPA-H noted CodeX as an important partner in strengthening the nation’s clinical trial infrastructure
- President’s Cancer Panel noted the importance of mCODE in their recommendations for NCI’s National Cancer Plan
- CMS using mCODE in their Enhancing Oncology Model
- FDA championing CodeX REMS Integration Use Case
- CDC’s use of mCODE for Central Cancer Registry Reporting IG
- ONC’s US Core Data for Interoperability (USCDI) + Cancer is aligned with mCODE
- ONC included select mCODE data elements in their USCDI+ proposed Quality Data Element List
Key References: Case Studies
mCODE Standard and CodeX Community
- Improving Cancer Data Interoperability: The Promise of the Minimal Common Oncology Data Elements (mCODE) Initiative. (Osterman et al., JCO Clinical Cancer Informatics Journal, Nov 2020)
- Unlocking the promise of learning from everyone with cancer. (Schnitzer., STAT, Feb 2023)
- 2019 Cancer Data Summit
- Getting Started with mCODE
- Latest mCODE FHIR IG.
- CodeX HL7 FHIR Accelerator Community
- CodeX HL7 Membership List
- CodeX Membership Options
- CodeX Governance
- CodeX Use Case Development Guidelines
- CodeX Use Cases
- CodeX Standards Design Principles
CodeX Radiation Therapy Treatment Data Use Case
- Radiation Therapy Treatment Data Use Case CodeX Page
- Minimum Data Elements for Radiation Oncology: An American Society for Radiation Oncology Consensus Paper(Hayman et al., 2019)
- Operational Ontology for Oncology (O3): A Professional Society-Based, Multistakeholder, Consensus-Driven Informatics Standard Supporting Clinical and Research Use of Real-World Data From Patients Treated for Cancer (May et al. et al., 2023)
PACIO Project
- PACIO Project Overview
- PACIO Project Charter
- PACIO Project Website
- HL7 Confluence Page for the PACIO Project
- Use Cases
- Dashboard
- Meeting Index
- YouTube Channel
- FHIR Implementation Guides:
- Personal Functioning and Engagement:
- Advance Directives Interoperability:
- Re-assessment Timepoints:
- Standardized Medication Profile:
- Transitions of Care:
- Coming soon!
- GitHub Repositories:
- Reference Implementation
- Sample Data